At What Point Does Medical Gaslighting and Patient Blame Become Negligence and Malpractice? COVID-19 Long Haulers Quote Their Providers.

Karyn Bishof
24 min readMar 28, 2021

The COVID-19 Pandemic has been wreaking havoc in the United States for a year now. There are an estimated 3–10 million Long Haulers in the U.S who have not recovered after being infected by the virus. The experiences we have faced with the unknowns, medical gaslighting, medical neglect and malpractive, patient blaming, and ego’s too large to admit they just don’t know or were wrong have run rampant within the Long Hauler community. It seems like just when you think you have heard it all, another post pops up that causes your jaw to drop and your fist to clench. Sadly, we are not the first population to face this. Chronic illness communities like ME/CFS, POTS/ Dysautonomia, EDS, MCAS, Autoimmune and Chronic Pain communities are all too familiar with what Long Haulers are now facing and have been fighting for years, some decades, for providers to recognize, accept, learn about and treat their illnesses. Additionally, most Long Haulers have now become members of the above mentioned chronic illness communites due to their COVID-19 infection, regardless of acute-case severity.

With Long Haulers and Long Covid, now known as PASC (Post-Acute Sequela of Covid-19), being recognized by the NIH, CDC, WHO and the White House, we…

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Karyn Bishof

Founder: Covid-19 Longhauler Advocacy Project & Long COVID State Advocates & Special populations, Co-Founder: Long Covid Alliance. FF/PM, B.S, Educator, Mom.