Disbelief and Lack of Support for Covid-19 Long-haulers

Karyn Bishof
7 min readJul 26, 2020

Five months in to the Covid-19 Pandemic in the United States, we are now hearing about the long term effects the virus is causing in patients. This goes against everything we were told in the beginning. Initially, we were told that the virus would run its course and we would be okay in fourteen days. Two days ago, the CDC announced that 1/3 of non-hospitalized patients were experiencing long term illness. For long-haulers, this message could have come sooner, but they are happy their push for awareness is finally making waves.

For many, it took about a month and a half to two months to realize they were not getting better. Many long-haulers experience flare-ups, meaning, they can have a few good days and then they relapse with symptoms for many more days. What is also upsetting for us right now is that the CDC only recognizes a handful of the symptoms we experience. If we made one list, we are well over one hundred symptoms all bought on by Covid-19. This unknown list of symptoms, the length of symptoms and flare-ups are what cause such disbelief in what we are experiencing.

Having support in your life is important. Most people depend on their friends and family for this. Right now, many long-haulers are finding their support…

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Karyn Bishof
Karyn Bishof

Written by Karyn Bishof

Founder: Covid-19 Longhauler Advocacy Project & Long COVID State Advocates & Special populations, Co-Founder: Long Covid Alliance. FF/PM, B.S, Educator, Mom.

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